How can I contact other people who are dealing with NDI?
|Topic:||Where can I find support?|
- The Diabetes Insipidus Foundation, Inc.
"The main goal of The Diabetes Insipidus Foundation, Inc. is improved treatment, and ultimately the prevention and cure of all forms of diabetes insipidus through research. DIF promotes a greater public awareness and understanding of the disease and will serve patients and their families with informational material and through the quarterly publication of Endless Water."
- The Diabetes Insipidus Foundation has a chat room.
KidComm and the Child Kidney Disease Mailing List
A group of parents of children who have various kidney diseases and communicate with each other and share news, problems and experiences via an automatic email list.
- National Organization for Rare Disorders, Inc.
NORD is the only organization of its kind--a unique federation of more than 140 not-for-profit voluntary health organizations serving people with rare disorders and disabilities. Thousands of affected individuals and their families--as well as support groups, health care and human service professionals, and advocates for people with rare disorders and disabilities--rely on NORD's assistance and leadership. NORD is a charity and continues its mission through the kindness and generosity of its donors.
- NDI Network - Yahoo Email Discussion Group
"The NDI Network is a support e-mail loop and a (physical) support dedicated to helping families who have daily contact with Nephrogenic Diabetes Insipidus."
- Office of Rare Diseases
A government list of links to patient support groups.