How can I help other families with NDI?
|Topic:||Where can I find support?|
If you would like to help the NDI Foundation by making a donation, please print this page and mail it to:
The NDI Foundation
P.O. Box 1390
Eastsound, WA 98245
Enclosed is my donation of
$25 $50 $100 $250 $500 $_________Other
My gift is in honor of in memory of
(Name of person) __________________________________________________________________
If you would like additional ways to help families with NDI, the following organizations may be able to help:
"The Diabetes Insipidus and Related Disorders organization is for people who have or care for someone with any form of a diabetes insipidus disorder. The main purpose of this network is to offer support for those surrounded by lack of information on these rare disorders. Stories with observations and or helpful hints may be published as part of this network."
- The Diabetes Insipidus Foundation, Inc.
"The main goal of The Diabetes Insipidus Foundation, Inc. is improved treatment, and ultimately the prevention and cure of all forms of diabetes insipidus through research. DIF promotes a greater public awareness and understanding of the disease and will serve patients and their families with informational material and through the quarterly publication of Endless Water."
- The Diabetes Insipidus Foundation has a chat room.
Nephrotic Syndrome Parent's Place and the Child Kidney Disease Mailing
A group of parents of children who have various kidney diseases and communicate with each other and share news, problems and experiences via an automatic email list.
- National Organization for Rare Disorders, Inc.
NORD is the only organization of its kind--a unique federation of more than 140 not-for-profit voluntary health organizations serving people with rare disorders and disabilities. Thousands of affected individuals and their families--as well as support groups, health care and human service professionals, and advocates for people with rare disorders and disabilities--rely on NORD's assistance and leadership. NORD is a charity and continues its mission through the kindness and generosity of its donors.
- Office of Rare Diseases
A government list of links to patient support groups.